Dementia Resources and Links

For further information on Alzheimerʻs disease and related dementias, these resources and links can answer all your questions.

Hawaii Resources

The Alzheimer’s Association 24/7 Helpline: (800) 272-3900
Website: www.alz.org
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support, and research. The Aloha Chapter serves individuals with memory loss, caregivers, health care professionals, concerned family and friends, and the general public. Services are statewide with specialists in every county.

The Association offers: information and referral, including multilingual information; care consultation; education for caregivers, community and professionals; support groups; safety programs, such as MedicAlert® + Alzheimer’s Association Safe Return®; a clinical trials index, Alzheimer’s Association TrialMatch®; and, online training and dementia certification; advocacy

Aloha Chapter Headquarters: 1130 N. Nimitz Hwy., Suite A-265, Honolulu, HI 96817

Hawaii Alzheimer’s Disease Initiative, UH Center on Aging
Website: http://www.hawaii.edu/aging/coa-projects-all/hadi-project/
Provides “Memory Care Navigation” (help to connect persons living with dementia and their caregiver/s to resources and assessment of needs :

  • Access to Memory Care Navigators (Public Health Nurses who assist families dealing with or persons living with memory loss who need assessment and care plan)
  • Savvy Caregiver Program workshops on Oahu (an group-based, evidence-based training program for caregivers of persons living with memory loss)
  • Dementia Capability Curriculum for providers
  • Archived videos and webinars on dementia topics
  • Adapted Provider Practice Tools for medical professionals and care coordinators
  • Bookings for Dementia Friends Hawaii Information Sessions: http://agefriendlyhonolulu.com/dementia-friends/

Positive Approach to Dementia Care (PAC) Training (Teepa Snow technique)
Dorothy Colby: http://www.dorothycolby.com

National Resources

ACT on Alzheimer’s (Minnesota)
http://www.actonalz.org

Advanced Dementia
https://www.nejm.org/doi/full/10.1056/NEJMcp1412652

Alzheimer’s Association 2019 Facts & Figures
https://www.alz.org/alzheimers-dementia/facts-figures

Alzheimerʻs Disease & Related Dementias (ADEAR, National Institute on Aging)
https://www.nia.nih.gov/health/alzheimers

Bathing Without a Battle
http://bathingwithoutabattle.unc.edu

Brain Health As You Age: You Can Make a Difference
https://www.nia.nih.gov/health/brain-health-resource

Caring for a Person with Alzheimer’s Disease (National Institute on Aging)
https://order.nia.nih.gov/sites/default/files/2017-07/Caring_for_person_with_AD_508_0.pdf

The Conversation Kit for Families and Loved Ones of People with Alzheimer’s Disease or Other Forms of Dementia
https://theconversationproject.org/starter-kits/

Dementia Friendly America
https://www.dfamerica.org

Dementia Friends USA
https://dementiafriendsusa.org

Living Well: A Guide for Persons with Mild Cognitive Impairment (MCI) and Early Dementia
https://www.actonalz.org/pdf/Living-Well.pdf

Mayo Clinic: Alzheimer’s Disease
https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/symptoms-causes/syc-20350447

National Alzheimer’s Project Act and National Plan to Address Alzheimer’s Disease
https://aspe.hhs.gov/national-alzheimers-project-act

National Alzheimer’s and Dementia Resource Center
https://nadrc.acl.gov

National Task Group on Intellectual Disabilities & Dementia Practices
http://aadmd.org/ntg

Rosalynn Carter Institute for Caregiving
http://www.rosalynncarter.org

Teepa Snow Positive Approach to Dementia Care website
https://teepasnow.com

U.S. National website
https://www.alzheimers.gov/

The Validation Technique (Naomi Feil)
https://vfvalidation.org

Virtual Dementia Tour
https://www.secondwind.org

International Resources

Alzheimer’s Disease Internatonal
https://www.alz.co.uk

Alzheimer’s Society UK
https://www.alzheimers.org.uk

Dementia Alliance International
https://www.dementiaallianceinternational.org


Supported in part by grant No. 90ADPI0011-01-00 from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy. The grant was awarded to Catholic Charities Hawaii for the Alzheimer’s Disease Program Initiative.